SCIENCE

April 30, 2022

German-language article on PSSD published in a German medical journal

Abstract: Antidepressants are among the most commonly prescribed medications. In particular, selective serotonin reuptake inhibitors (SSRIs), serotonin-norepinephrine reuptake inhibitors (SNRIs) and atypical antipsychotics are increasingly prescribed. In a subset of patients, SSRIs, SNRIs, and potentially other psychotropic drugs can trigger post-SSRI sexual dysfunction syndrome (PSSD syndrome), which is characterized by symptoms of sexual dysfunction and, in an unclear number of patients, emotional blunting. In everyday clinical practice, some of the symptoms are difficult to distinguish from those of mental illness, which can lead to sufferers being confronted with the recommendation to take psychotropic drugs again.

While the risk of persistent adverse drug reactions (ADRs) from conventional antipsychotics is now widely accepted, SSRIs are considered well-tolerated with few side effects. The present article:

• summarizes current knowledge on the development, course, triggering drugs, affected persons and symptoms of the PSSD syndrome;
• discusses recently published diagnostic criteria; and
• addresses communication challenges and guidelines for clinicians when PSSD is suspected.

PSSD syndrome has been insufficiently researched, and no treatment options are available. Findings from initial studies should therefore be reviewed to inform systematic research into the syndrome. It is recommended to systematically record and report persistent adverse drug reactions that may be related to PSSD syndrome in order to create a basis for further investigations and studies on the PSSD syndrome.

MEDIA

12.04.2022

PSSD Hilfe Deutschland e.V. as a guest in the PsychCast with Dr. Jan Dreher

Many thanks to dr. Jan Dreher, who gave us the opportunity to talk about PSSD in an interview format. We talked about what PSSD is, how PSSD develops, whether there are treatment options and much more.

SCIENCE

22.02.2022

Proposal for diagnostic criteria published

A proposal for diagnostic criteria for PSSD was published in the International Journal of Risk and Safety in Medicine, led by Professor David Healy. The article is freely accessible and can be downloaded as a PDF here or in our downloads.

ASSOCIATION

16.07.2021

New version of the articles of association entered in the register of associations

The new version of the statutes, which was unanimously approved at the extraordinary general meeting on February 7th, 2021, was entered in the register of associations.

MEDIA

20.05.2021

Partner organization in Canada broadcasts second podcast on PSSD

We are pleased that our partner organization in Canada has started a podcast series on PSSD. The second episode aired today. It is available on the PSSD Canada website. Following an interview with a young woman in April, this time Emily Gray interviews 24-year-old Shawn, who has suffered from PSSD since he was 14.

Fundraising campaign for research project by Professor Roberto Cosimo Melcangi (University of Milan, Italy) extended again

The fundraising campaign for Professor Roberto Cosimo Melcangi's research project has been extended again. Over EUR 13,000 have been collected since December 28th, 2020. The new goal is 30,000 EUR. Anyone can participate!

The campaign is 100% trustworthy. For legal reasons, the University of Milan is not allowed to promote the campaign (see entry from 12/28/2020).

RESEARCH/COMMUNITY

18.05.2021

Project StuffThatWorks collects and systematizes information on PSSD

After registering, you can post your experiences with PSSD on the relatively new StuffThatWorks website. The aim of the project is to analyze the entered data to identify similarities, e.g. B. in relation to the most common symptoms or the success rate of certain treatment attempts, to make matches visible.

MEDIA

31.03.2021

New report about PSSD

With the participation of Dr. Signerski Krieger, Mrs. Celine Lüning and the PSSD Hilfe Deutschland e. V., a new report on PSSD was produced by ARD Reporter.

MEDIA

16.02.2021

PSSD Help Germany e. V. now also on Twitter

You can reach the PSSD Hilfe Deutschland e. V. now also on Twitter @PSSD_Germany! We will primarily publish the stories of our members and other affected people there.

PUBLICITY

January 2021

Campaign for Rare Disease Day on February 28th, 2021

For Rare Disease Day 2021 on February 28th, 2021 we are collecting testimonials from those affected.

14.03.2021

We are pleased that we, our partner organizations abroad, received a total of 40 reports from PSSD sufferers on the Rare Disease website and on Medium

FUNDING

28.12.2020

Fundraising campaign for research project by Professor Roberto Cosimo Melcangi (University of Milan, Italy)

A fundraising campaign is currently running via gofundme.com. 10,000 euros are to be collected for a research project on PSSD by Professor Roberto Cosimo Melcangi. As of December 28, 2020, over EUR 7,000 had already been collected. Anyone can participate!

The campaign is 100% trustworthy. For legal reasons, the University of Milan is not allowed to promote the campaign. The EUR 10,000 only cover the direct material costs.

09.01.2021

Intermediate goal of 10,000 euros achieved.

21.02.2021

The fundraising goal has been increased to 20,000 euros, so donations are still needed.

28.03.2021

Donation target of 20,000 euros reached.

PUBLICITY

27.11.2020

Participation in the DGPPN Congress

The symposium papers on PSSD were a success. Several interested questions were received from the audience (unfortunately not visible due to the digital format).

RESEARCH

November 2020

Mario Negri Institute for Pharmacological Research (Milan) plans to survey doctors on PSSD



>> Website of the institute

RESEARCH

17.10.2020

University of Iowa survey open to all concerned

The University of Iowa is currently conducting an online survey entitled "Evaluation of sexual health associated with selective serotonin reuptake and selective norepinephrine reuptake inhibitor use". Dr. Amy Pearlman from the Institute of Urology is responsible for creating and evaluating the questionnaire.

Those affected can participate regardless of their gender and nationality. The only requirement is that you have taken an SSRI or an SNRI (list of SSRIs/SNRIs). Participation is strongly recommended, duration approx. 20 minutes.

Survey complete!

MEDIA

29.09.2020

1Live F**k-Forward post addresses PSSD

The 1Live-Podcats F**k Forward picks up different questions about sexuality. In the episode Sex and Depression from September 22, 2020, the topic of PSSD is also addressed from the 26th minute. Recommended post!

PUBLICITY

28.09.2020

Contributions to PSSD at the DGPPN Congress 2020

At this year's DGPPN Congress, there will be two PSSD Help contributions on the subject of PSSD as part of a symposium entitled "Two perspectives on adverse drug reactions under and after psychopharmacotherapy: Experts and those affected' representatives in exchange".

COMMUNITY

19.09.2020

German-language PSSD forum

A German-speaking PSSD forum has existed since today. The forum is independent of the association and offers the opportunity to exchange ideas anonymously via PSSD. It is available at https://pssd-forum.xobor.de/.

ASSOCIATION

07.09.2020

Mourning for Philipp Wilde

We mourn Philipp Wilde, who passed away on September 6th. took his own life out of despair about his health. We are very sad about this and thank Philipp for his tireless commitment to the club. We will never forget you.

RESEARCH

September 2020

Follow-up letter to relevant institutes and centers of all German university hospitals

In order to gain more experts for our network, we are again writing to the relevant institutes of all German university hospitals. We are looking forward to the feedback.